Thursday, 7 May 2015


Self-care: the act of looking after yourself in a healthy way.

The NHS definition makes it sound so easy!

It's not, and I'm done with the self-care stuff. But I know that diabetes without self-care becomes a shit-show very quickly, which I'm currently experiencing. Yet I'm really struggling to find the motivation at the moment to do anything more than test my blood sugar and guesstimate at my insulin doses. 

Have you ever wished there was an "off switch" and you could just magic diabetes away for a little bit? That's how I currently feel. I want out for a little bit, maybe bribe my pancreas to do its' thing for a week to ten days so I don't have to think about carbs and blood sugars and where to stash my insulin pump.

I had my first appointment at the hospital I've transferred my care to the other week. I was referred to the wrong clinic. Not the best of starts. I received a letter in the post with a new appointment. September. I wasn't happy with that. So I phoned them up and requested an appointment with a DSN. 

That appointment was yesterday. 

And it helped. 

She downloaded my meter and pump data and I cringed, despite having checked the reports function on my meter the night before, so I had some idea of what to expect.

"I'm high like 75% of the time," I said as my meter was downloading, "It's not a pretty picture, it's not where I want to be, but I just don't know what to do."

"It's okay," she replied, "we'll look at the data, we'll work together to make the changes. We'll get you back to where you want to be."

"But, really, it's not good. I just want you to know that. Here it from me and not my meter data."

She laughed. "Stop worrying. We'll sort it. And then it'll go to shit again and we'll sort it again." She stopped and scrolled through all the various reports that could be accessed. I wished there weren't so many. "Okay...well you're all over the place, but you knew that. And you know that nothing's going to change unless you're prepared to put a bit of work in. I'll be here in the background, you can come back in in a few weeks and we can number crunch again and see where you're at, call me, email me, whatever. But nothing's going to get better unless you put the work in. Basal testing, insulin to carb ratio testing, carb counting properly, you know the drill."

I sat there nodding, tears threatening to spill, and I let them. (If this DSN is going to know every little bit about my diabetes health physically, she can know where I'm at emotionally as well. Because it's not just the physical stuff.) I let everything out: how demotivated I've been feeling, how I know I need to do something but I don't know what, how I'm getting used to running at the numbers I'm seeing on my meter.

I calmed myself down, we came up with a plan, and we wrapped up the appointment. 

"Quickly, before you go; as this is your first actual appointment with us, I just need to ask you a couple of things. Insulin to carb ratios? Basal rates? Do you smoke? Do you drink? Do you exercise?"

And I reeled off answers to all her questions.

"Last one, how often do you have hypos?"

We both laughed.

"I've just told you I'm high like 75% of the time...hypos aren't the issue right now!"

"Okay, I'll ask you that one again at your next appointment. I want you back in in four weeks. Will your work let you do that? I think we need to review and just catch up, make sure we're getting things back on track."

I nodded. I apologised for crying, thanked her for her help/support/advice and made an appointment for four weeks time. 

Time to get back on this whole self-care thing. For real this time

No comments:

Post a Comment